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Showing posts from June, 2024

June 27. Big Escape

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 Headed home today.  

Update June 26

 Lori continues to do well post surgery. Hopefully, she can go home tomorrow. 

Post Surgery Update

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When I sent this picture to my daughter in law she said “Lori makes brain surgery look beautiful.”  While we have a long road ahead of us I agree with her.  Doctor said she is doing as well as she possibly could   Keep her in your heart these next few months please as she continues the fight.  

Today is the big day!

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  Lori is in surgery.  Updates soon.   12:50 CST. Right hemisphere is done.  She did GREAT.  Now they are doing left.  Probably about two more hours.  3:00  out of surgery. All went well.  

DBS and me. How'd we get here?

Hiya - Lori here.  Most of you know that I have been grappling with Parkinson's since early 2020 and before when my symptoms had no name.  There have been many stages from early denial to recent realizations.  My journal reflects on the loss, grief, optimism, pessimism, potential causes, potential cures, eastern thought, western science and the kindness of others.  More on that later... The current score is LORI - X, Parkinson's -X+1.   over the last year, I've been focused on vibrotactile gloves.  It's been a great project with a lot of positive result for me. My "on" periods have been greatly improved, but simultaneously "off" windows have become more frequent and much more severe.  It's a problem. DBS isn't a cure, but it should help with the severity of the on/off fluctuation.  I hope that it allows for greater functionality, alleviates the dystonia in my upper back & neck and allows me to move more. The risks are that it may worsen b...